Oh, September 11th. You are a horrible day for so many reasons. 7 years ago we received the worst news of our lives. Eliza’s condition was not going to improve like the doctors thought. We were up against a completely different beast that would continue to take away all of her abilities. It had already…
Author: elizaswish
First Day of School
Today the girls had their first day of school! I never could have imagined that Eliza would be able to attend school with a sibling. What a blessing! Caroline is starting kindergarten and Eliza is entering 4th grade. We are going to start with just a couple afternoons per week to see how she does…
Rebekah
A couple days ago we had the sad opportunity to say our goodbyes to a dear, dear friend with MLD. We met Rebekah’s family shortly after Eliza’s diagnosis and they have been wonderful examples of perseverance, long-suffering and keeping a sense of humor during difficult times. They are absolutely incredible. Rebekah is their 4th child…
Bryce Canyon
We decided to continue our “Tour of Utah State Parks” this weekend and we took a detour on our way to the Manti Pageant. Bryce Canyon is one of my favorite places. It is so unique, picturesque and the geography is truly amazing. The beauty never ceases to amaze me. After our detour we traveled…
The Grand Canyon
A couple weekends ago, our family took a day trip to the Grand Canyon. We decided to venture to a lookout area on the north end. It was a long, bumpy drive but the views were spectacular. It is so remote that there are not any handrails! It was about 105* that day so Eliza…
Family Photos
Our wonderful friend, Brandon Peterson, was kind enough to take our family photos again. He was so sweet and patient as we tried to pose Eliza while trying to keep her as comfortable as possible – not an easy task! My arms were shot by the end of the session but I love how they…
We’re Off to See the Wizard
For Grandma LoAnn’s birthday, we went to see the Wizard of Oz at Tuacahn. The show was very well done but after a long day, I was asleep by intermission! Oh well, the rest of my family enjoyed it.
A New Buggy
Callahan’s accident happened 3 years ago today and I found myself reliving that whole ordeal in my head. The difficult parts still make me shudder, but remembering all of the love and support makes me smile – I’ll hold on to those memories instead. I am so grateful that we were blessed with the outcome…
Heartbroken
It has taken me far too long to type this update but it has been an emotional time. We have lost 5 friends (all fought various neurological diseases) in the past two months! I have been worried about Eliza and her health for a while and watching these sweet families suffer and grieve has made…
Our Dear Friend, Mac
I planned on getting on the computer today to FINALLY write an update on Eliza’s birthday when I heard some very sad news. Our dear friend, Mac, passed away this morning. Mac was six months older than Eliza but they were diagnosed about the same time. I have followed Mac’s journey through this difficult MLD…