Eliza was diagnosed with late-infantile Metachromatic Leukodystrophy (MLD) on September 11, 2007 after months of frustration and misdiagnosis. Up to this point, Eliza was a "typically developing child" who reached all of her milestones on time, if not early. In April 2006 she developed sudden onset Esotropia, which caused her eyes to cross. Her first MRI came back normal and two surgeries were performed to correct her eyes.
Books have always been one of Eliza's favorite things. She loves listening to books on a daily basis. Before MLD, Eliza was able to recite many of her favorite books! Even though she can no longer see the pictures, turn the pages or recite the words, Eliza still loves being read to. Eliza’s Library was started by her family as a way to honor her, help other children develop a love for reading and spread awareness about MLD. We accept any new and gently used children’s books for libraries throughout the world.
Learn more about Eliza’s Library and how you can contribute.
Eliza loves all things girlie. Nails, pink, hair, music and more pink. Keep up with Eliza and her adventures.
Oh, September 11th. You are a horrible day for so many reasons. 7 years ago we received the worst...
Today the girls had their first day of school! I never could have imagined that Eliza would be able...
A couple days ago we had the sad opportunity to say our goodbyes to a dear, dear friend with MLD....
We decided to continue our “Tour of Utah State Parks” this weekend and we took a detour...
A couple weekends ago, our family took a day trip to the Grand Canyon. We decided to venture to a...
Our wonderful friend, Brandon Peterson, was kind enough to take our family photos again. He was so...
For Grandma LoAnn’s birthday, we went to see the Wizard of Oz at Tuacahn. The show was very...
Callahan’s accident happened 3 years ago today and I found myself reliving that whole ordeal...
