I planned on getting on the computer today to FINALLY write an update on Eliza’s birthday when I heard some very sad news. Our dear friend, Mac, passed away this morning. Mac was six months older than Eliza but they were diagnosed about the same time. I have followed Mac’s journey through this difficult MLD world for almost 6 1/2 years and although I never had the opportunity to meet him or his sweet family in person, I consider them dear friends. I always enjoyed receiving email updates on him, Christmas cards and sweet gifts they would send to Eliza. It was easy to feel a connection with them because I think we have a similar philosophy on life and our challenges with MLD. I admire them so much. I am happy to know that Mac is now MLD free and able to do the things that his body wouldn’t let him do, but at the same time, my heart is breaking for his sweet family. I hope they can feel our love from across the country. We love you, Murray Family! You will be in our thoughts and prayers.