Oh, September 11th. You are a horrible day for so many reasons. 7 years ago we received the worst news of our lives. Eliza’s condition was not going to improve like the doctors thought. We were up against a completely different beast that would continue to take away all of her abilities. It had already…
Category: MLD Friends
Heartbroken
It has taken me far too long to type this update but it has been an emotional time. We have lost 5 friends (all fought various neurological diseases) in the past two months! I have been worried about Eliza and her health for a while and watching these sweet families suffer and grieve has made…
Our Dear Friend, Mac
I planned on getting on the computer today to FINALLY write an update on Eliza’s birthday when I heard some very sad news. Our dear friend, Mac, passed away this morning. Mac was six months older than Eliza but they were diagnosed about the same time. I have followed Mac’s journey through this difficult MLD…